Clik here to view.
Walkstool, Oh How I Love Thee…
Walkstool This is my new best friend: Walkstool Folding Stool Basic 60 Black. I would never have gotten through the trip to Camp Lejeune last weekend if not for this baby. We went down to see my son...
View ArticleClik here to view.
What’s inside my potsy purse?
Today, I did a video reply to “What’s Inside Your Potsy Purse” – this is my very first vlog (what a sucky word!) of any kind, so be gentle with me:) Here goes… If you are interested in other videos to...
View ArticleClik here to view.
A Shower Isn’t Priceless (MasterCard Style)
So what does a shower REALLY cost, you ask? Ivory soap: $4.99 for bargain pack. Suave Rosemary & Mint Shampoo/Conditioner: $6.99 for twin pack. Standing in the shower: 87 EXTRA heart beats per...
View ArticleClik here to view.
Tag, I’m It
Line 1: Dysautonomia | Line 2: POTS & DDD Well, I did it. I ordered myself a medical alert bracelet. I figured at this point, I really have to have one. I mean, if I pass out at Food Kitty (I mean...
View ArticleClik here to view.
This is so tachy!
Yes, I can spell, thanks….I am referring to tachycardia, which I am entirely SICK of. I had about a week’s worth of ‘vacation’ from the high numbers, but they are creeping back up, and I am not feeling...
View ArticleClik here to view.
Hard Core
One thing I’ve realized (again, but in a different way) is that I don’t have to prove how hard core I am. I know what I need to know, and have for a long time. Disability threw me for a loop, I admit,...
View ArticleClik here to view.
Outstanding morning, but…
I had such a wonderful morning for a POTsy. Woke up to find the antique custom wrought iron railings my grandmother had made for her mother in New Orleans installed! The forms were almost finished for...
View ArticleClik here to view.
POTSgrrl: What I wish someone told me the day I was diagnosed with POTS…
POTSgrrl: What I wish someone told me the day I was diagnosed with POTS…. Excellent piece! I have combo POTS and NCS, as well as EDSIII (which seems to be my underlying cause). The research is really,...
View ArticleClik here to view.
Good VIBErations: Review of the Caseen VIBE Stylus line by a digital painter
As my readers already know, but new stumbles hereon may not, I am a digital painter with severe disabilities. I paint in bed on my iPad 2 and for obvious reasons, my product selections are rather...
View ArticleClik here to view.
To Err is Expected
iBP Graph It is definitely a challenge getting a reading when my pulse pressure (PP) drops really low. No method or cuff will get a reading every time when it is really low. I was asked about how to...
View ArticleClik here to view.
Clothing for Zebras of the bendy kind!
Cincinnati Innovates. Filed under: EDS, Gear, Strategies For Coping, Tips & Tricks
View ArticleClik here to view.
My Medical — The Personal Medical Record for You, The Patient
My Medical — The Personal Medical Record for You, The Patient. This is my personal favorite medical record keeping method. With this, I am able to keep synced copies of my entire medical file...
View ArticleClik here to view.
Rollin’ POTSie Style!
Well, after laying on the floor at the doctor’s office Thursday afternoon, curled on my side with my coccyx pillow between my knees yet again, I finally bit the bullet and ordered a wheelchair. It’s...
View ArticleClik here to view.
My Medical App for iOS and now on Android, too!
My Medical — The Personal Medical Record for You, The Patient. This is my all time favorite, most used medical app. I keep it on the home screen of ever device I own (iPad air, iPad mini, iPhone 5) as...
View ArticleClik here to view.
iMedicalApps | The leading Physician review of medical & healthcare apps
iMedicalApps | The leading Physician review of medical & healthcare apps This is a resource I like, so I thought I would share it with you all. Below is a description taken from the site about...
View ArticleClik here to view.
Dysautonomia Shirts!
Dysautonomia – Store – Health: Proceeds from every shirt purchased will be donated to the National Dysautonomia Research Foundation! Filed under: Advocacy & Awareness, Dysautonomia, Gear Tagged:...
View ArticleClik here to view.
On My Must Have List: HurryCane
I actually use two HurryCanes when doing any significant walking (doctors orders), one for minor walking. Around the house I am usually okay without, since there is always furniture or a wall near me...
View Article
